Being Studied And Treated

Trigger Warning: This is a deep, heavy, and honest episode that may not be suitable for everyone including dark themes, politics, and autistic life struggle. Please proceed intentionally and do your own thinking as required. If you don’t have the ability to listen with an open mind please don’t!

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In this episode, Nicnac turns a critical eye towards what little help is offered for divergent individuals with and without means in The United States. They break down their personal experience with their support systems both internal and external. They’ve come to like and accept most aspects of being an autistic, physically limited, queer, and trans person. But, they still struggle and endure much physical and mental pain from both the internal and external world. 

Being physically limited, their autism is their superpower. They have no interest in a cure! 

They don’t use person-first language these days because they would not be who they are were it not for their genetic inheritance and the traumatic life experience that inheritance has lead to.  it’s pain that leads to creative divergent ability. Nothing else. They seek only support that will empower their authentically autistic self. 

Little of that is available in The US. Still, less of it is being developed. Nicnac encourages anyone listening that cares to address them using their proper name and pronouns (Nicnac, They/Them). They understand that this takes getting used to and ask that people self-correct quickly before moving on.

To the scientific, education and medical communities, they point out that much of what they are currently doing isn’t helpful to their experience of being on the spectrum. It’s a spectrum so results will vary from individual to individual. They list their unmet needs in hopes that someone with the power to help meet them might hear. They do this mainly because their in-person articulative abilities are more limited than in the context of the podcast.

They find it strange how it all comes down to Maslow and Rosenberg. As if society has spent the last 48 years or so intentionally forgetting the tremendous thought that took place in the mid to late 20th century. They implore listeners to get over their amnesia. Pointing out that lives depend on it and noting that continuing their own life is mostly contingent on getting their needs meet and having their own space where they can stimm, game and live as they see fit. Including their extremely divergent sleeping habits that are functionally non-functional.

They have no qualms with dying on this hill. After so many years of living a life of social deprivation and ostracisation, the conclusion to them is pretty simple. People that fail to meet societal standards aren’t failures. Society is the falling element. They implore people to care enough to do better. Knowing that more wrongness will come. But, hoping that rightness will come along at some point. If not for them then for future generations that endure the dualistic nature of being on the harsher end of our neurologically diverse species.

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Learn From Autistics

Autistamatic YouTube Channel

Autistic Collaboration

Sarah Kurchak

Credits

The opening music is Raindrop Rhapsody by Josh Eikenberry.

The closing music is Catch Me If You Can by Attica Attica. Find them at atticaattica.bandcamp.com.

The Nicnac Podcast & FSRideAlong Series is © 2006-2021 by Nicnac Marsh and is released under a Creative Commons Attribution-NonCommercial 4.0 International License

Going Around Again

Trigger Warning: This is a deep, heavy, and honest episode that may not be suitable for everyone including dark themes, politics, and autistic life struggle. Please proceed intentionally and do your own thinking as required. If you don’t have the ability to listen with an open mind please skip this one!

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Autistic Education Survey

Show Notes

In this episode, Nicnac wrestles with the reality of their internal world and how that impacts the way they see the external world after losing a social connection they had a lot of hope for earlier in the month. While they know that attempts at sharing their internal world rarely go well no matter the social context, they hold steadfast in their desire to embrace their authentic autistic and borderline self. 

They express hope that careful online communities can continue to find the kind of lived truths that medicine and science can’t. Feeling that, although life for anyone not rich white and male is difficult, it’s better to intellectually and emotionally battle oppression than to completely withdraw and mask. Nicnac ain’t down yet. But, they’ve more than had it with a world that is hell-bent on oppressing divergent thoughts.

They close by again encouraging others with lived autistic experience to take Detester Maginzine’s educational survey if they have the capacity to do so. They are putting as much as they can into listening to others with greater or different knowledge of the lived experience than they possess. Please see the links below so you don’t have to take their word for it.

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Nicnac Podcast: Telling Our Stories-Interview with Suzanna Chen of Detester Magazine

Autistic Education Survey

Detester Magazine

Learn From Autistics

Autistamatic YouTube Channel

Autistic Collaboration

Sarah Kurchak

Credits

The music is Catch Me If You Can by Attica Attica. Find them at atticaattica.bandcamp.com.
The Nicnac Podcast & FSRideAlong Series is © 2006-2021 by Nicnac Marsh and is released under a Creative Commons Attribution-NonCommercial 4.0 International License

Rationally Irrational

In this episode, Nicnac reflects on the view outside their Windows and tries to synthesize the last month or so of their progress and creative endeavors over the last month or so. This is definitely an ongoing creative experiment so Nicnac would appreciate constructive feedback.

Nicnac is thankful to their recent guests for sharing their time effort and views. Please don’t forget to check out past episodes.

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Other Links

Detester Magazine

Autistic Education Survey

Learn From Autistics

Autistamatic YouTube Channel

Autistic Collaboration

Sarah Kurchak 

Credits

The opening music is Raindrop Rhapsody by Josh Eikenberry.

The closing music is Catch Me If You Can by Attica Attica. Find them at atticaattica.bandcamp.com.

“Money” © 2012 by Nicnac Marsh and is released under a Creative Commons Attribution-NonCommercial 4.0 International License


The Nicnac Podcast & FSRideAlong Series is © 2006-2021 by Nicnac Marsh and is released under a Creative Commons Attribution-NonCommercial 4.0 International License

Telling Our Stories-Interview with Suzanna Chen of Detester Magazine, And An Autistic Youth Advocate

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Show Notes 

In this episode, Nicnac has a conversation with Suzanna Chen. Suzanna is an autistic youth, advocate, and member of the Detester Magazine Team. The team has recently put out a survey designed to improve young autistic life by collecting first-hand accounts of the experience. Please consider completing the survey if you are an autist. Also, be sure to check out the other great work being done at Desterer Magazine and Learn from Autistics

Links

Survey

Detester Magazine

Detester Autism Advocate Interviews

Learn From Autistics

Credits

The opening music is Raindrop Rhapsody by Josh Eikenberry. The closing music is Catch Me If You Can by Attica Attica. Find them at atticaattica.bandcamp.com
The Nicnac Podcast & FSRideAlong Series is © 2006-2021 by Nicnac Marsh and is released under a Creative Commons Attribution-NonCommercial 4.0 International License

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The Philosophy Of Disability

In this episode, Nicnac describes their Philosophy of Disability and the way that the world they live in forces them into thinking about it in many ways at the same time. They reason that the best way to make progress on this is to keep sharing their experience and empathically listening to the experience of others.

Autistic Education Survey

Learn From Autistics

Autistamatic YouTube Channel

Autistic Collaboration

Sarah Kurchak 

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Credits

The opening music is Raindrop Rhapsody by Josh Eikenberry. The closing music is Catch Me If You Can by Attica Attica. Find them at atticaattica.bandcamp.com
The Nicnac Podcast & FSRideAlong Series is © 2006-2021 by Nicnac Marsh and is released under a Creative Commons Attribution-NonCommercial 4.0 International License

Abilities And Need

In this episode, Nicnac briefly returns to one Marx line to get at individual variation and adds a corollary about the social contract.

Nicnac notes the importance of living in a dreamland to keep oneself going but underscores the importance of keeping the ratio of the time one spends in dreamland and the time one spends in the real world as balanced as possible in line with needs.

Nicnac ends by imploring folks to learn to accept every individual fully. Both their failures and their success. Even if you can’t relate to them. Believing that this is as close a path as we may find towards species growth.

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Credits

The opening music is Raindrop Rhapsody by Josh Eikenberry. The closing music is Catch Me If You Can by Attica Attica. Find them at atticaattica.bandcamp.com

The Nicnac Podcast & FSRideAlong Series is © 2006-2021 by Nicnac Marsh and is released under a Creative Commons Attribution-NonCommercial 4.0 International License

Sometimes I Am Wrong

In this episode, Nicnac reflects on what they took away from the wonderful conversation they had in the last episode with Antony Ruttuno and tries to grapple with their own human failings. They talk about what they learned from finally finding Judy Singer’s work and what they think this means for themselves and the political Neurodiversity Movement at large. They mention that they have started to look further into George Harrison and confess that their search for knowledge and their creative expressions are merely coping skills of extremely varying value. Concluding that, like any human, sometimes they are wrong.

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Credits

The opening music is Raindrop Rhapsody by Josh Eikenberry. The closing music is Catch Me If You Can by Attica Attica. Find them at atticaattica.bandcamp.com
The Nicnac Podcast & FSRideAlong Series is © 2006-2021 by Nicnac Marsh and is released under a Creative Commons Attribution-NonCommercial 4.0 International License

Living Is Easy With Eyes Closed

In this episode, Nicnac sits down with Antony Rotunno, a teacher, podcaster, musician, truth seeker and life coach to talk about artistic media creation, the search for truth, John Lennon, The Beatles and everything in-between. This is a hugely deep conversation that will likely cause both Nicnac and listeners to rethink some things.

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Credits

Check out all of Antony’s work at https://www.antonyrotunno.com/

The opening music is Raindrop Rhapsody by Josh Eikenberry. We also hear a selection of Antony’s “Life Goes On” featuring an amazing violin solo by María Martín. “Life Goes On” is copyright 2017 by Antony Rotunno and included with his permission. Check out his music at https://www.antonyrotunno.com/ The closing music is Catch Me If You Can by Attica Attica. Find them at atticaattica.bandcamp.com.

I thank these artists for allowing their creations to be used in this production. 

The Nicnac Podcast & FSRideAlong Series is © 2006-2021 by Nicnac Marsh and is released under a Creative Commons Attribution-NonCommercial 4.0 International License

What Is Neurodivergance?

In this episode, Nicnac gives explaining and defining Neurodivergance another try, having felt that they may have glossed over a few things in recent episodes. They return to their favorite historic Psychologist Abraham Maslow to point out an important oversight in his research that some current scholars are beginning to understand. Namely, the internal experience of autism and other forms of neurodiversity. 

They highlight the recent work done by Dr. Dora Raymaker and The Academic Autism Spectrum Partnership in Research and Education at Portland State University around the topic of Autistic Burnout and the age range when it becomes most severe. Generally speaking, around the time of transition into adulthood between about 15 and 25. In Nicnac’s case, this period extended well into their early 30’s. Nicnac notes that they relied heavily on and connected strongly to the work of John Lennon and The Beatles during this period of their life. Nicnac notes some notable parallels between John’s life experience and their own with both Nicnac and John seeming to express less external public distress by their early to mid-30s. Nicnac suspects that in both cases it’s more a matter of masking and avoiding known triggers than anything else.

Nicnac makes mention of a recent survey invitation they got to contribute to the creation of a guidebook for autistic teens as one example of improved research and collaborative methodology that is inclusive of the first-hand internal experience. Nicnac hopes that if researchers continue to include and involve people with the lived internal experience that mental health at large might slowly turn an important corner. 

Nicnac again notes the importance of the neurodivergent online community. A community that often seems to be lightyears ahead of researchers especially when it came to finding an overlap between neurodiversity and gender diversity. Nicnac mentions where they are in their translation and that they are hoping they’ve found the right support in this area.

Finely, Nicnac mentions plans they have to branch out with the podcast despite their social limitations. This will hopefully include an interview with Antony Rotunno in the next episode. A podcaster, teacher, truth seeker and recording artist who knows John Lennon about as well as anyone who wasn’t John Lennon can. They also mention the story of Robert Pirsig. A person they hope to research and cover in some depth down the line. Finely, they mention their desire to interview other neurodivergent people and activists who are similarly hell-bent on making the world better even if we can’t stand humanity overall.

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Credits

The opening music is Raindrop Rhapsody by Josh Eikenberry. The closing music is Catch Me If You Can by Attica Attica. Find them at atticaattica.bandcamp.com


The Nicnac Podcast & FSRideAlong Series is © 2006-2021 by Nicnac Marsh and is released under a Creative Commons Attribution-NonCommercial 4.0 International License

Silicon Valley Meets Hellhole, CA

In this episode, Nicnac covers the history of Hellhole, Ca (Chico, CA) from the little they know about The Mechoopda Maidu to the days of The Bidwells, the agriculture migration, the segregation and sundown era, The Cold War and the town being discovered by Silicon Valley retirees as the nearby foothills burn and the creeks go dry. Nicnac sees what city planners and developers are doing. Namely trying to create a quaint clone of Scottsdale Arizona for the retirees. But, this planning approach ignores Chico State along with the unhappy tempest-tossed shelterless, welfare and working-class lifers stuck here for lack of an alternative. 

Nicnac points out “you grew up in this hellhole too” and tries to settle for the value of simply reporting things as they are. Nicnac ends by pointing out the hypocrisy of The iPhone using Silicon Valley person. They were almost that person. They are glad that they’ve moved on but they remain unsure of how to deal with a demographic that thinks listening to NPR makes any sort of personal human crimes a nonissue. Moreover, they wonder why they keep caring so much about the fate of humanity when they clearly hate all humans.

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Credits

The opening music is Raindrop Rhapsody by Josh Eikenberry. The closing music is Catch Me If You Can by Attica Attica. Find them at atticaattica.bandcamp.com

The Nicnac Podcast & FSRideAlong Series is © 2006-2021 by Nicnac Marsh and is released under a Creative Commons Attribution-NonCommercial 4.0 International License